ROCK FOR A CURE – TSC ALLIANCE

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Tommy Lindsey suffers from Tuberous Sclerosis.   I was blessed to be able to be a part of this event, which was hosted at Nicotra’s Ballroom in Staten Island, New York.

Tuberous Sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs.  You will see it referred to both as tuberous sclerosis (TS) and tuberous sclerosis complex (TSC). The term TSC is used in scientific literature to distinguish tuberous sclerosis complex from Tourette’s syndrome.

The disease affects some people severely, while others are so mildly affected that it often goes undiagnosed.  Some people with TSC experience developmental delay, intellectual disability, and autism.  However, there are also many people with TSC living independent, healthy lives who enjoy challenging professions such as doctors, lawyers, educators, and researchers. (Source:  TSC Alliance).

For more information about Tuberous Sclerosis Complex and how you can help, please visit Tuberous Sclerosis Complex (TSC) Alliance.

Actress Julianne Moore (left) has become an advocate for TSC and has participated in several events.  Here she is seen with Tommy, Tom, and Peggy Lindsey.

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

The Lindsey Family with Julianne Moore. As the story goes, Big Tommy chased her down in the streets of NYC and enchanted her with stories of Little Tommy. As a result, she has become a wonderful help to the cause.

 

Tommy is very close with Julianne Moore.

Tommy is very close with Julianne Moore.

 

Tommy & Grandma

Tommy & Grandma

Nicotra's Ballroom in Staten Island, New York

Nicotra’s Ballroom in Staten Island, New York

 

Nicotra's Ballroom in Staten Island, New York - Laura Bruen, Photographer

Nicotra’s Ballroom in Staten Island, New York

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

 

 

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Peter Pizza in Staten Island, New York - Laura Bruen, Photographer

Peter Pizza in Staten Island, New York

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

Cast of Chopped, including my friend Robert Bermeister from my hometown with Julianne Moore – Nicotras Ballroom in Staten Island, New York

 

Tommy & Peggy speaking to the Media with Julianne Moore - Laura Bruen, Photographer

 Staten Island Band Screaming Broccoli

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

Julianne Moore with Screaming Broccoli – Nicotras Ballroom Staten Island, New York

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

Winners!

 

Flood Sister's Kidney Foundation - Laura Bruen, NYC / NJ Photographer

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

These cakes from Sweet Sue’s Specialty Cakes were incredible.

 

Rock For A Cure - Laura Bruen, NYC / NJ Photographer

Pepperjack Grill representing.

Laura Bruen Julianne Moore

Julianne Moore speaks to Tommy about TSC.